Si prefieres colaborar con nosotros a través de la donación de algún objeto, cumplimenta el formulario y nos pondremos en contacto lo antes posible, tú eres la fuerza que necesitamos.
Puedes colaborar con nosotros de la manera que tú elijas, tú eres la fuerza que necesitamos.
Si lo que quieres es colaborar con nosotros a través de tu voluntariado, por favor cumplimenta el formulario y nos pondremos en contacto lo antes posible, tú eres la fuerza que necesitamos.
Cookie | Duración | Descripción |
---|---|---|
__cf_bm | 1 hour | This cookie, set by Cloudflare, is used to support Cloudflare Bot Management. |
_cfuvid | session | Calendly sets this cookie to track users across sessions to optimize user experience by maintaining session consistency and providing personalized services |
cookielawinfo-checkbox-advertisement | 1 year | Set by the GDPR Cookie Consent plugin, this cookie records the user consent for the cookies in the "Advertisement" category. |
cookielawinfo-checkbox-analytics | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics". |
cookielawinfo-checkbox-functional | 11 months | The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". |
cookielawinfo-checkbox-necessary | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary". |
cookielawinfo-checkbox-others | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other. |
cookielawinfo-checkbox-performance | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance". |
CookieLawInfoConsent | 1 year | CookieYes sets this cookie to record the default button state of the corresponding category and the status of CCPA. It works only in coordination with the primary cookie. |
PHPSESSID | session | This cookie is native to PHP applications. The cookie stores and identifies a user's unique session ID to manage user sessions on the website. The cookie is a session cookie and will be deleted when all the browser windows are closed. |
rc::a | never | This cookie is set by the Google recaptcha service to identify bots to protect the website against malicious spam attacks. |
rc::c | session | This cookie is set by the Google recaptcha service to identify bots to protect the website against malicious spam attacks. |
viewed_cookie_policy | 11 months | The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data. |
XSRF-TOKEN | 2 hours | This cookie enhances visitor browsing security by preventing cross-site request forgery. |
Cookie | Duración | Descripción |
---|---|---|
yt-remote-cast-available | session | The yt-remote-cast-available cookie is used to store the user's preferences regarding whether casting is available on their YouTube video player. |
yt-remote-cast-installed | session | The yt-remote-cast-installed cookie is used to store the user's video player preferences using embedded YouTube video. |
yt-remote-connected-devices | never | YouTube sets this cookie to store the user's video preferences using embedded YouTube videos. |
yt-remote-device-id | never | YouTube sets this cookie to store the user's video preferences using embedded YouTube videos. |
yt-remote-fast-check-period | session | The yt-remote-fast-check-period cookie is used by YouTube to store the user's video player preferences for embedded YouTube videos. |
yt-remote-session-app | session | The yt-remote-session-app cookie is used by YouTube to store user preferences and information about the interface of the embedded YouTube video player. |
yt-remote-session-name | session | The yt-remote-session-name cookie is used by YouTube to store the user's video player preferences using embedded YouTube video. |
ytidb::LAST_RESULT_ENTRY_KEY | never | The cookie ytidb::LAST_RESULT_ENTRY_KEY is used by YouTube to store the last search result entry that was clicked by the user. This information is used to improve the user experience by providing more relevant search results in the future. |
Cookie | Duración | Descripción |
---|---|---|
_gat | 1 minute | Google Universal Analytics sets this cookie to restrain request rate and thus limit data collection on high-traffic sites. |
Cookie | Duración | Descripción |
---|---|---|
_ga | 1 year 1 month 4 days | Google Analytics sets this cookie to calculate visitor, session and campaign data and track site usage for the site's analytics report. The cookie stores information anonymously and assigns a randomly generated number to recognise unique visitors. |
_ga_* | 1 year 1 month 4 days | Google Analytics sets this cookie to store and count page views. |
_gat_gtag_UA_1975075_20 | 1 minute | Google Analytics sets this cookie for tracking data. |
_gid | 1 day | Google Analytics sets this cookie to store information on how visitors use a website while also creating an analytics report of the website's performance. Some of the collected data includes the number of visitors, their source, and the pages they visit anonymously. |
sbjs_current | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
sbjs_current_add | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
sbjs_first | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
sbjs_first_add | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
sbjs_migrations | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
sbjs_session | 1 hour | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
sbjs_udata | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
Cookie | Duración | Descripción |
---|---|---|
OAGEO | session | OpenX sets this cookie to avoid the repeated display of the same ad. |
OAID | 1 year | Cookie set to record whether the user has opted out of the collection of information by the AdsWizz Service Cookies. |
VISITOR_INFO1_LIVE | 6 months | YouTube sets this cookie to measure bandwidth, determining whether the user gets the new or old player interface. |
VISITOR_PRIVACY_METADATA | 6 months | YouTube sets this cookie to store the user's cookie consent state for the current domain. |
YSC | session | Youtube sets this cookie to track the views of embedded videos on Youtube pages. |
yt.innertube::nextId | never | YouTube sets this cookie to register a unique ID to store data on what videos from YouTube the user has seen. |
yt.innertube::requests | never | YouTube sets this cookie to register a unique ID to store data on what videos from YouTube the user has seen. |
Cookie | Duración | Descripción |
---|---|---|
__Secure-ROLLOUT_TOKEN | 6 months | Description is currently not available. |
captcha-cookie | 1 day | Description is currently not available. |
miaportacion_session | 2 hours | Description is currently not available. |
Yvonne Maxwell lucha por la distonía global.
/en EventosEl otro día vino a la Fundación, por sorpresa, Yvonne Maxwell, irlandesa de Dublín que ahora está en Madrid y […]
NOTICIA AGENCIA SINC: Hallan un protector molecular para la enfermedad de Kennedy
/en Científicas, Sin categorizarSi quieres leer el artículo, puedes hacerlo en el siguiente enlace: Hallan un protector molecular para la enfermedad de Kennedyhttp://www.agenciasinc.es/Noticias/Hallan-un-protector-molecular-para-la-enfermedad-de-Kennedy
Noticia CSIC: Desvelan uno de los mecanismos moleculares implicados en la enfermedad de Crohn
/en Científicas, Sin categorizarSi quieres leer el articulo completo puedes seguirlo en el siguiente enlace: Desvelan uno de los mecanismos moleculares implicados en la […]
Noticias del CSIC: Primer exoesqueleto infantil para atrofia muscular espinal
/en Científicas, Sin categorizarPuedes leer todo el artículo en el siguiente enlace: Primer exoesqueleto infantil para atrofia muscular espinal
Noticia en ABC: El trasplante de células gliales podría curar la enfermedad de Huntington
/en Científicas, Sin categorizarPuedes leer todo el artículo en el siguiente enlace: El trasplante de células gliales podría curar la enfermedad de Huntington
Noticia en El Economista: Los laboratorios están desarrollando 560 fármacos para enfermedades raras
/en Científicas, Sin categorizarPuedes leer el artículo entero en el siguiente enlace: Los laboratorios están desarrollando 560 fármacos para enfermedades raras
Noticia de Madridmasd: Describen un aumento del estrés oxidativo en las enfermedades metabólicas hereditarias
/en Científicas, Sin categorizarNoticias sobre un nuevo estudio que pertenece al grupo de investigación que también se encuentra entre nuestras líneas de investigación […]
Equipo de Investigación Dra. Isabel Illa Sendra, Dr. Jordi Díaz Manera y Dr. Eduard Gallardo. Hospital Santa Creu i Sant Pau. Laboratorio de Neurología Experimental del Institut de Recerca del HSCSP de Barcelona
/en ComitéCompartimos con vosotros las publicaciones científicas de la Dra. Isabel Illa Sendra, miembro de nuestro Comité Científico. Illa es también […]
Noticia de Navarra: Cinco ensayos clínicos buscan paliar epilepsia en niños con enfermedades raras
/en Científicas, Sin categorizarRecogemos esta positiva noticia del Diario de Navarra, que se hace eco de cómo la Clínica Universidad de Navarra han […]
Noticia de 20 Minutos: La Red de Madres y Padres Solidarios recaba fondos en feria para investigar enfermedades raras
/en EventosNos entusiasma tener novedades tan interesantes de un colectivo tan apreciado por la Fundación y colaboradores esenciales para nosotros: La […]