We invite you to the launch of the You’re Not Alone network for rare diseases
Next Monday, 16 December, the Isabel Gemio Foundation will present the network ‘You’re Not Alone’ as part of the Erasmus+ project ‘Quality Youth Mentoring for Inclusion’, co-funded by the European Union. The network is made up of national and international organisations and has the following objectives:
- Encourage investment in rare disease research: Promote and support initiatives that boost the funding and development of scientific studies, clinical trials and research programmes that improve the knowledge, treatment and care of RD.
- Promote the inclusion and participation of young people with rare diseases: Implement the project ‘Quality Youth Mentoring for Inclusion’ aimed at creating mentoring programmes that facilitate the social, educational and labour inclusion of young people affected by RD, ensuring their full participation in society.
- Become a recognised advisor on rare diseases: To strengthen the network’s capacity to provide expert advice to national governments and European institutions on rare diseases, influencing the development of public policies and health and social care strategies.
We invite social organisations, organisations in the field of mentoring and education, researchers and scientists, as well as members of the public administration, to join us and join our network. Access is free of charge until full capacity is reached. You can register on the following link:
The event will take place on
- 16th of December
- 12:00 to 14:00 hours
- Colegio Internacional G. Nicoli (P.º de Eduardo Dato, 4, 28010, Madrid)
We are waiting for you!
