Conference to analyze the ‘Hoja de Ruta para las Enfermedades Raras’ document and initiative

The Isabel Gemio Foundation has attended and collaborated in the conference held this morning to analyze the main points of interest of the document ‘Hoja de Ruta para las Enfermedades Raras’.

Published in 2021, the ‘Roadmap for Rare Diseases’ is a consensus document that identifies the main challenges of rare diseases and offers concrete solutions to improve the quality of life of patients.

PRESS: Feder / La Vanguardia