Did you watch all the stories we shared in September?

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  • Sara is 24 years old and she suffers a genetic disproportion of muscle fiber types, due to a mutation of RHNO gene.
  • Laura suffers the Charcot Marie Tooth disease (CMT). She was diagnosed with this disease when she was 7 years old. 
  • Mónica is 21 years old and she suffers three rare syndromes: Willkie syndrome, Nutcracker syndrome and May-Thurner syndrome.
  • Antonio is 19 years old, and he suffers Becker muscular dystrophy.

The initiative, co-funded by the Erasmus+ Programme of the European Union, aims at the creation of a European network of European foundations, institutions, and entities in order to promote the exchange of experiences and good practices. The partners of the initiative are:

  • Fundación Isabel Gemio (Spain)
  • Federación Española de Enfermedades Neuromusculares (Spain)
  • Parent Project APS per la Ricerca sulla Distrofa Muscolare (Italy)
  • Charcot-Marie-Tooth et Neuropathies Peripheriques (France)
  • Uniamo Federazione Italiana Malattie Rare (Italy)