NEW ONLINE MEETING OF THE ERASMUS+ EDUCATIONAL AID KITS IN THE FIELD OF RARE DISEASES

On December 12th, 2024, the partnership of the Erasmus+ project EDUCATIONAL KITS IN THE FIELD OF RARE DISEASES, co-funded by the European Union, held a new online meeting to analyze and monitor the development of the results.

During the meeting, the partnership continued working on the development of the methodological guide and educational kits aimed at achieving a correct inclusion of students affected by rare diseases in Vocational Training (VET). In this way, the project involves different professionals from health, education, social services and sports whose training is essential to develop specific skills to adequately respond to the needs of people affected by rare diseases.

Rare diseases represent a series of obstacles that have a profound impact on the lives of those who suffer from them, including delays in diagnosis, which, on average, can last up to five years. In addition, their chronic and progressive nature negatively impacts on the mobility, autonomy and emotional and economic stability of patients and their families.

During the meeting, the partners continued preparations for the next transnational meeting of the project, which will take place in Barcelona on Friday, January 24th, 2025.