New online meeting of the Erasmus+ EDUCATIONAL AID KITS IN THE FIELD OF RARE DISEASES

On Thursday, November 7, 2024, the partners of the Erasmus+ project Educational Kits for Rare Diseases, co-funded by the European Union, held a new online meeting. During the meeting, progress was shared on the methodological guide and educational kits designed to enhance the inclusion of students affected by rare diseases in Vocational Education and Training (VET). The initiative also includes training for VET teachers and students in the fields of healthcare, social services, and sports, fostering specific skills to address the needs of individuals affected by these conditions.

Rare diseases present numerous challenges that significantly impact the lives of those affected, including delays in diagnosis, which on average can take up to five years. Furthermore, their chronic and progressive nature affects patients’ mobility, independence, and emotional and financial stability, as well as that of their families. However, these challenges can also strengthen family cohesion and foster greater empathy within social and professional environments.

During the meeting, the partners decided that the second transnational project meeting will take place in Barcelona on Friday, January 24th, 2025. This meeting will allow the partners to assess the project’s progress and continue collaborating to ensure the effectiveness and accessibility of its outcomes.