Fundación Isabel Gemio coordinates the first transnational meeting of the Erasmus+ THE VALUE OF FACING SCHOOL

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The Erasmus+ THE VALUE OF FACING SCHOOL held its first transnational meeting in Rome on October 24th, 2022. The meeting room was placed at the Telethon Fondazione’s office, which it’s one of the entities that support the research of rare diseases in Italy and Europe. 

During the meeting, the partnership reviewed the progress of the methodological guide INCLUSION AND EQUITY IN SCHOOL that will focus on topics such as digitalization, inclusive pedagogies, and collaborative working methods. Aiming to make a change in educational methods to students with rare diseases, this guide will offer a complete overview of the situation in the different countries involved in the initiative.

Similarly, the partnership will develop a set of Open Educational Resources that will help teachers to create an inclusive environment; allow students to identify the barriers that face children with special needs; and provide parents with new mechanisms to communicate with the school board.

The partnership has also developed a web platform for the project, and has created profiles on Instagram and Facebook, to share the latest news of the initiative. Follow us to know more information about it.

This initiative is co-funded by the European Union.

Roma hosts the third transnational meeting of the Erasmus+ YOUNG PEOPLE WITH RARE DISEASES: THE VALUE OF FACING LIFE

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The Erasmus+ YOUNG PEOPLE WITH RARE DISEASES met in Rome on October 24th for the third transnational meeting of the project. The partnership analyzed the progress and coordinated the following steps. 

First, the participants reviewed the statistics of the IGTV: YOUTH WITH COURAGE. The audience in the different social media profiles has increased considerably since the last meeting. It was decided that the online questionnaire that will measure the impact of the initiative will be launched in November, along with the sustainability campaign that will allow people suffering from rare diseases to share their own stories with the hashtag #youthwithcourage.

Later, Stefano Benvenuti, Public Affair Manager of Telethon Italy, joined the meeting to explain the partnership the main lines of research supported by the Telethon Fondazione and the principal activities carried out to fund the investigation of genetic diseases. “Funding research is not enough: we want to turn the results of excellent scientific research into treatments that are accessible to all patients. Because everyone has the right to a cure”, he claimed.

Samuele, one of the protagonists of the initiative IGTV: YOUTH WITH COURAGE, also joined the meeting to share his experience with the partnership. “I really enjoyed participating in this project because the interview led me to reflect about my life and my values”, he explained. “I hope that the interview helps people to understand the positive and negatives things of my life”, he added.

The initiative YOUNG PEOPLE WITH RARE DISEASES: THE VALUE OF FACING LIFE, is co-funded by the Erasmus+ programme of the European Union.